'Very painful' Toddler dies in hospice after parents lose legal fight to take her home

Alta Fixsler, from Salford, died last Monday surrounded by her family. The toddler, who was two years old when she died, suffered a brain injury at birth. Earlier this month, her parents lost their legal battle with Manchester University NHS Foundation Trust.

They wanted life support to be withdrawn at home, rather than in a hospital or hospice.

Alta’s father, who cannot be named for legal reasons, told the BBC that Alta “was our whole world”.

After a legal battle, a High Court judge ruled her treatment should be withdrawn in a children’s hospice.

Her father said: “She passed away in a hospice on Monday. I don’t know even how to explain how I am feeling.

“She fought for her life for three hours after the life support was turned off.”

He said the court battle had been “very painful”, adding: “The trust would not let us take her home.”

Since birth, Alta has been unable to breathe, drink or eat without medical help.

She was in constant pain, had no “conscious awareness” and no prospect of recovery, doctors said.

READ MORE: Parents’ grief as doctors decide to end toddler’s life support

The judge also said that stopping life-sustaining treatment was in the “best interests” of the child.

A spokesperson for Alta’s family said: “Despite our best efforts and deep discussions to continue Alta’s critical care and give her the best possible quality of life, we are distraught at the decision taken by the court to end her life.

“We strongly believe that making life-changing decisions on behalf of children ought to be a parental right and it is important that we open up the debate around this.

“We call on the Government to look at the current legislation and change it.”

A funeral took place on Monday evening and Alta is to be buried in a cemetery outside Jerusalem.

The president of the Board of Deputies, Marie van der Zyl, said: “We mourn the tragic loss of Alta Fixsler. We wish her parents Chayim Aruchim – a long life – and that they should know no more sorrow in the years ahead.”

Toli Onon, the joint group medical director for Manchester University NHS foundation trust, said: “We would like to offer our deepest sympathies and condolences to Alta’s family.

“Our staff worked very hard to care for Alta, and our thoughts continue to be with her family at this extremely sad time.”

Leave a Reply

Your email address will not be published.